Monday, August 16, 2004

Speak Out of the Clutter Closet, Save the DC Budget! You Can Testify for DC Council

2025 DC Council Hearings.
Please Submit Your Testimony!  (Suggestions below.)

DBH, DACL, FEMS  Budget Oversight Hearings April 2025. Exact dates and 
New links to upload Your Testimony coming soon.
(Full schedule: https://dccouncil.gov/wp-content/uploads/2025/03/3-12-2025-Fiscal-Year-2026-Budget-Hearing-Schedule.pd)

DRAFT TESTIMONY
for you to submit: 

https://app.box.com/s/qu3jd2b4aisxjjax67ij8kvrfv3a2epr You can change, cut, add to, send exactly as written -- anything you want! Your submission is so much appreciated! Thank you!

~ ~ ~ ~ ~ ~ ~ ~

Additional information follows.
Dates change; details don't.

Thank you for your interest and support!

Screenshot 2024-02-03 124822
 

Please speak out about Hoarding Disorder

YOU DON’T HAVE TO SELF IDENTIFY AS A
PERSON LIVING WITH HOARDING DISORDER
TO SPEAK OUT OF THE CLUTTER CLOSET!

You can help greatly by testifying at the spring
2025 DC Council 
Budget Oversight Hearings. 
You as just a concerned citizen can help by
submitting a short written comment.

Committee on Health has oversight for
DC Health
.

You can say:
DBH need to do something to address the
unmet need and severe behavioral health
service gap for District residents living with
the diagnosis defined in 2013's DSM-5 as
“hoarding disorder” (“HD”). Numerous other
jurisdictions in the DMV have hoarding task
forces. Why doesn’t DC?

1-- You help greatly by submitting your short
written comment here via email to:
Marcia Huff <mhuff@dccouncil.gov>, and CC:
Ashley Strange <astrange@dccouncil.gov>  

Budget Hearing information coming soon here.           
(Recent Performance hearings here:
https://lims.dccouncil.gov/Hearings/hearings/640
https://lims.dccouncil.gov/Hearings/hearings/641)

2-- Click: “Submit Testimony” at top right.
3-- Complete information requested. Upload
your written testimony. (You can copy the 

red text directly from above.)

Committee on Health has oversight for
Department of Behavioral Health (DBH).

You can say:
DBH need to do something to address the
unmet need and severe behavioral health
service gap for District residents living with
the diagnosis defined in 2013's DSM-5 as
“hoarding disorder” (“HD”). Numerous other
jurisdictions in the DMV have hoarding task
forces. Why doesn’t DC?

1-- You help greatly by submitting your short written
comment for the upcoming Budget Oversight
Hearing.
Hearing will soon scheduled to take place in March or
April, 2025. 
Link to submit your testimony will be
posted here soon.
2-- Click: “Submit Testimony” at top right.
3-- Complete information requested. Upload your
written testimony. (You can copy the red text directly
from above.)

Committee on the Judiciary & Public Safety
has oversight for Fire and Emergency Medical
Services Department (FEMS)
.

You can say:
The diagnosis defined as "hoarding disorder"
(HD) directly relates to FEMS because DBH
lack of early behavioral health intervention
costs FEMS, both in dollars and also in life
and limb. 

FEMS carries an unnecessarily large financial
burden, because DBH inaction means FEMS
face this diagnosis when HD has reached a
Stage 4 emergency -- far more costly in dollars
 -- and human capital. 

With your oversight over FEMS, if DBH
provides no early intervention, can your
Committee do anything to help reduce harm
for FEMS? Where is DBH in all this? FEMS
need 
DBH to provide HD support not only to
save money for FEMS, but 
also to reduce
harm for FEMS. 

If DBH won't address early intervention that
could prevent a bad -- and costly -- outcome,
911 is not activated until it is too late. 

"1 in 40 people in the US has a hoarding
disorder," says December 21, 2023, National
Geographic article, and people living with this
diagnosis “are compelled to hold onto the
majority of their belongings, even when doing
so means severely cluttered surroundings
that decrease their quality of life and
jeopardize their safety through increased risk
of fire, mold or rodent infestation, ..." (https://www.nationalgeographic.com/
premium/article/new-virtual-reality-hope-
hoarders-declutter-clean) 

“Containing a fire in a home where hoarding
is an issue can take twice as many fire
fighters and twice the time.” (https://www.iaff
.org/wp-content/uploads/Fire_Fighter_
Quarterly/2012-Jul- Aug.pdf -- International Fire
Fighter, Journal of the International Association
of Fire Fighters, July/August 2012) 

If DBH continues to do nothing, can this
Committee with your oversight over FEMS
do anything to help?

1-- You help greatly by submitting your short written
comment.
Hearing will soon scheduled to take place in March or
April, 2025. 
Link to submit your testimony will be
posted here soon.
(Recent Performance hearings here:
https://lims.dccouncil.gov/Hearings/hearings/708)

2-- Click: “Submit Testimony” at top right.
3-- Complete information requested. Upload your
written testimony. (You can
copy the
red text directly from above.)

Committee on Executive
Administration and Labor

has oversight for Department of
Aging and Community Living (DACL),
including
Adult Protective Services
.

You can say:

The diagnosis defined as "hoarding
disorder" 
(HD) directly relates to APS 
because DBH lack of early intervention 
results in APS making costly emergency
interventions that could have been
prevented by DBH behavioral health 
services.

HD currently represents an unmet behavioral
health need.
DBH should spend a relatively
smaller amount of taxpayer money to do a
 training on evidence based Peer Response
Team treatment approach to the diagnosis
“hoarding disorder.” ("Peer-led groups were
as effective as psychologist-led groups,
providing a novel treatment avenue for
 individuals without access to mental health
professionals."
 https://pubmed.ncbi.nlm.nih.gov/30083381/)

Low cost funding allocation for DBH to train
DBH Certified Peer Specialists to support
DC residents living with HD would save
money by providing early intervention and
harm reduction.

Currently DBH refers HD out to Adult
Protective Services. APS is not a
health care agency and does not provide
behavioral health services for HD,
which is a medical, health diagnosis.
APS work for HD is emergency, crisis
intervention — at far higher cost than 
if DBH provided early intervention. APS
performs costly heavy duty clean out,
places people living with this
untreated HD diagnosis under costly
guardianships, 
and houses people living
with late stage, crisis HD 
in costly long term
nursing care — just because 
the
individuals did not receive timely behavioral
health support, that could reduce harm long
before the case of HD reaches stage four.

With your oversight over DACL and APS, if
DBH provides no early intervention, can
your 
Committee do anything to help reduce
harm for District residents undergoing
removal from their homes by APS? Where
is DBH in all this?
 

APS need DBH to provide HD support to
save 
DC taxpayer money spent on costly
late stage APS intervention.

1-- You help greatly by submitting your short written comment.

Budget Hearing information coming soon here.           

(Recent Performance hearings here: 
https://lims.dccouncil.gov/Hearings/hearings/688 

2-- Click: “Submit Testimony” at top right.
3-- Complete information requested. Upload your
written 
testimony. (You can copy the red text directly
from above.)

Additional Hearing Information will be updated here on this page.
This page was updated Tuesday, March 25, 2025.

DBH needs at least to make a start, talking and thinking about HD publicly. HD won’t be solved by just sweeping it under the rug.


We need:

1– early intervention

and

2– harm reduction.


DBH do not have a mandate to address hoarding disorder. No one at DBH is working on this DSM diagnosis.


BACKGROUND
DBH Access Helpline (AHL) refers people with HD issues to Adult Protective Services (APS). That emergency crisis intervention is very traumatizing and is not person centered nor trauma informed. Some people referred to APS end up in long-term care if they can’t change their behavior — this on authority from APS, now housed under the Department of Aging (? no longer DHS). DBH’s referring AHL callers who talk about hoarding to APS is not a solution. That is like waiting until the house is completely flooded to call the roofer.

Research shows HD behavior presents as early as 11 years old. DBH states it has a strong focus on youth — HD is a youth outreach issue. Children are living with HD, and children are growing up cared for by people with collecting behavior, all going unaddressed and unserved.

In 2006 – almost two decades ago -- the Metropolitan Washington Council of Governments called "HOARDING: A Dangerous Secret." ( http://www1.mwcog.org/uploads/committee-documents/tVhbWVY20061106110151.pdf )

The Washington Post article, "Hoarding is a serious disorder — and it's only getting worse,” stated six percent of people have HD. With our Washington, DC, census more than 700,000 individuals, six percent means over 40,000 District residents undiagnosed and without behavioral health support – plus additional friends, family, neighbors, and service providers affected by people living with Collecting Behaviors. ( http://www.washingtonpost.com/national/health-science/hoarding-is-serious-disorder--and-its-only-getting-worse-in-the-us ) Over 40,000 people live hidden inside the clutter closet because of shame, stigma, and judgment, without any help from DC DBH.

What can the DC Council do to fix this unmet need among DC residents, please?

Please testify, and please share this message with others.

Thank you for sharing!

QUESTIONS?
Please contact: Hilary 202-813-0088 DisordeRThePlay@gmail.com DisordeRThePlay.blogspot.com

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